Do you have expertise in dementia, caregiving, navigation and/or volunteerism? Are you willing to devote 4 hours of time over a few months to answer 3 sequential online surveys and participate in an anonymous discussion board?

If so, we would like to speak with you about participating in our study.

In partnership with Health Canada, we are a team of researchers interested in adapting the Nav-CARE program for family and friend caregivers of older adults living with dementia. Nav-CARE is a program that utilizes trained volunteer navigators to help support older adults with life limiting illnesses access resources and services in their community while also developing personal and meaningful relationships. As caregivers of older adults with dementia have unique needs, careful consideration of how to adapt this program to meet these needs is required.


In order to adapt the program, we need to develop competencies and a curriculum that can guide the training of volunteer navigators. It is essential that we include the perspective of experts who have lived experience as caregivers, and/or who understand navigation, volunteer training and development, as well as dementia to ensure the development of these competencies are accurate and effective. As part of our data collection we are seeking to administer 3 sequential e-surveys and a discussion board to develop consensus regarding what competencies a volunteer should have in order to fulfill roles to meet the needs of family caregivers of persons with dementia, and the relative importance of each competency. Following this, the research team will develop an online curricular module to meet these competencies and train volunteers. You will then be asked to review the module to ensure it is appropriate.


If you would like to learn more about participating please contact Madison Huggins via email at


Please note: If you are a caregiver of an older adult with dementia you will receive a $100 honorarium for participating in this research.


Please do not respond publicly as your confidentiality will not be preserved.